Supplemental Financial Assistance Now Available
Baton Rouge, LA — December 12, 2023 — Hope Charities, a non-profit that provides education and financial support for individuals with chronic illness, has opened a new fund to provide financial assistance to individuals living with hemophilia. Through the fund, Hope Charities will provide recurring monthly assistance to eligible patients with annual household incomes up to 250 percent of the federal poverty level to cover household and necessary living expenses.
Hemophilia is an inherited blood disorder in which the blood does not clot properly. There are two types of hemophilia: Factor VIII deficiency (Hemophilia A) and Factor IX (Hemophilia B). The severity of either type of hemophilia is defined by the amount of factor present in the blood. Treatment for hemophilia consists of intravenous or subcutaneous injections of factor. These treatments do not cure hemophilia, but greatly reduce and in some cases, eliminate bleeding episodes. Recently, gene therapy products for hemophilia have become available to select groups of hemophilia patients.
While treatment is readily available, for many patients the cost is prohibitive. In 2023, Accredo’s analyses revealed the average annual cost for clotting factor for a patient with severe hemophilia to be $393,000. In comparison, a newly released gene therapy product for Hemophilia B, costs $3.5 million for a single dose!
“We are excited to launch this new program to provide financial assistance to care for the indigent population. People living with hemophilia often struggle to pay for life’s basic necessities,” says Hope Charities’ President and CEO, Jonathan James. “Thanks to the generosity of our donors, we are able to provide assistance to patients through individual grants to ensure fiscal stability and support in paying for vital needs. When people lose their homes or cannot afford utilities such as water or electricity, caring for physical health needs is not a priority. The lack of basic necessities can lead to catastrophic results for someone with a chronic condition and we hope to make a positive impact in the lives of the people we are here to serve.”
To determine eligibility and apply for assistance, visit Hope Charities’ website, hopeforhemophilia.org/programs. All applications are subject to approval based on applicant eligibility and availability of funds, and applicants must be able to provide photo identification, proof of expenses, diagnosis, and income. To learn how you can support this or other Hope Charities programs, visit hopeforhemophilia.org/donate.
About the Hope Charities
Hope Charities is a nonprofit organization that serves patients across the United States. Founded in 2009, Hope Charities has provided over $2 million in financial support to patients, families, and caregivers who are impacted by a bleeding disorder. In addition to providing financial assistance, Hope Charities offers educational opportunities for patients and caregivers to learn to manage their chronic condition, emotional support to help them through moments of crisis, and advocates for policy change that will lead to better health outcomes for the patient community. For more information, visit hopeforhemophilia.org.