Registration is closed

February 21 & 22

​Two-day online Only event

​Come for one session or all sessions

Over the last 5 years many new medications have been released to help people with bleeding disorders with many more in the pipeline to be released in the near future. Having choices of products to treat bleeding disorders is vital since not all products work the same for every person. In this online patient education conference, we will hear from experts on many of the new products available, or soon to be available, for people living with Hemophilia A, Hemophilia B, and Von Willebrand’s disease. Our goal for this meeting is that you can gather all the information you need to make the most educated decisions about your treatment plan with your providers.

At this event we will learn more about:

New Factor Protein therapy
Gene Therapy
Monoclonal Antibody treatment
Active studies

​Join us online via Zoom for some amazing sessions! ​

You will have the opportunity to meet individuals and families from around the country who live with a bleeding disorder, win some amazing prizes, and learn from some incredible speakers. You must register to get all the information and updates on how to join each Zoom session. 

Registration is closed

Where will this be held?

This event will be held via live stream on Zoom. You must register to get the invitations to Zoom breakout sessions and win prizes. 

Event Schedule 

Join us for one session or all the sessions

 Wednesday, February 21st (Central Standard Time)
9:00 AM: OPENING SESSION: Hope Charities

• Jonathan James, CEO

10:15 AM: ROUNDTABLE EXHIBIT HALL
11:30 AM: PFIZER

• "Pfizer Hemophilia Updates" - Tiffany Smith, DNP, Field Medical Director, Rare Hematology
  

12:30 PM: BREAK
​1:00 PM: CSL BEHRING

• "HEMGENIX ​(ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved ​gene therapy for hemophilia B" - Dr. Mark Reding

​2:15 PM: SPARK

• "“Introducing Investigational Gene Therapy Clinical Trials for Hemophilia" - Guillermo Campillo Sr., Patient Education Liaison

​3:30 PM: ROUNDTABLE EXHIBIT HALL5:00 PM: SANOFI

• "Switch It up! Learn What a First-in-Class Treatment Could Mean For Your Hemophilia Management Plan" - Jeff Bridges

6:15 PM: GENERAL SESSION: Hope Charities

• ​Jonathan James, CEO

Thursday, February 22nd (Central Standard Time)
9:00 AM: GENERAL SESSION: Hope Charities

• "Emerging Therapies for Hemophilia" - David Clark

10:15 AM: ROUNDTABLE EXHIBIT HALL
11:30 AM: SANOFI

• "The Balancing Act in Hemophilia: An Investigational Treatment for Bleed Management" - Michael D. Pickett-Leonard, PhD, MS

12:30 PM: BREAK
1:00 PM: HEMA BIOLOGICS

• "Treatment option for the hemophilia community" - Dr. Guy Young, MD

2:15 PM: PARAGON

• "Stretching and Flexibility" - Kevin Harris, Community Development Specialist
  

3:30 PM: ROUNDTABLE EXHIBIT HALL5:00 PM: OCTAPHARMA

• ​"Iron Deficiency - The most underestimated concern" - Claudio Sandoval, MD

​6:15 PM: CLOSING SESSION: Hope Charities

• ​Jonathan James, CEO

come hang out with us on computer, tablet, or mobile phone

Registration is closed

We love to have fun and give, give, give! During each session you will have a chance to win some amazing prizes! 

Participate for a chance to win!

You could win a $25, $5o, $100 or $200 Amazon gift card

See our full terms of engagement for a list of rules and qualifications

Terms Of Engagement

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A Special thank you to our sponsors:

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Silver Sponsors

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BRONZE SPONSORS

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Exhibit sponsors