Hope For Hemophilia
  • Home
  • About
    • What We Do >
      • Programs
      • Patient Stories
    • Meet Our Team >
      • Board of Directors
      • Advisory Council
      • Our Staff
      • James' Family Story
    • Resources
    • Products
    • Leader Resources
    • Sponsors
    • Financials
  • Events
    • ALL HOPE EVENTS
    • Prophy Conference 2023
    • Crawfish Boil
    • Family Education Weekend
    • Joint Health Conference
    • HOPE Conference
    • HOPE Night
    • Qualified Training
  • Contact
    • Request A Speaker
  • Applications
  • Blog
  • Donate

Advisory Council

Advisory Council

The Hope Charities Advisory Council was established to serve the board of directors and the staff of the organization with specialized expertise in various areas of service. We value the advise and wisdom of our advisors. 

Picture

Dr. Dana Kuhn

Dana Kuhn, Ph.D. founded Patient Services, Inc (PSI) in 1988 and retired from PSI in 2018.  Before the passage of important health care legislation, Dr. Kuhn created the model and program which addressed affordability of expensive prescription drugs to patients and families living with rare and chronic illnesses. His national model provided patients and families with financial premium and copayment assistance thus, helping them avoid financial devastation.  Living with chronic illness himself and experiencing the death of his spouse who was unable to access a life-saving drug, was his motivation to create PSI. He serves people with his Master of Divinity and Ph.D. degrees. Dr. Kuhn was a key advocate for achieving national blood safety and “game-changing” legislation.  He is very passionate about patient assistance programs and the safety-net they bring to patients and families in dire circumstances.  
Picture

debbie de la riva, LPC

Debbie de la Riva received a master’s degree in counseling psychology from the University of Houston and became a licensed professional counselor in 1989. Her work experiences have included serving as a stress management therapist in a psychiatric hospital, managing a mental health resource department and was an Executive Director of an affiliate of Mental Health America.
When her son was born with severe hemophilia in 1994, the entire de la Riva family quickly became involved with the bleeding disorders community on a local and national level.  Debbie is a former Executive Director of the Lone Star Chapter of the National Hemophilia Foundation.
Debbie is a certified Mental Health First Aid Instructor and provides training to hemophilia treatment centers and chapters around the country. Debbie founded Mental Health Matters Too to help raise awareness and provide education around the issue of mental health. 
Picture

David James

David is the Assistant Director for Employment Development Services, a non-profit that helps people with disabilities secure employment for the state of Louisiana. His passion for people living with disabilities started by raising a son with hemophilia and continues by serving the needs of people with all types of disabilities. David served as the president and chairman of the board of directors for hope charities until 2013 and continues to serve as an advisory member. He has 3 children, 8 grandchildren and is married to the love of his life of 48 years.

Picture

Stephen le ph.d

Stephen Le is a licensed Pharmacist in Louisiana and Texas with over 15 years of experience. He is a graduate of Xavier University of Louisiana, and has a passion for patient care. Stephen has severe hemophilia and understands the challenges of living with a bleeding disorder and its limitations. Stephen is driven to help people with hemophilia and various bleeding disorders by using his personal experience and professional knowledge.
Picture

stuart graydon

Stuart is the former Chairman of Investortools, a firm he helped start and run for over 30 years. Prior to Investortools, he was an associate at McKinsey & Company, an international management consulting firm. Although retired, he continues to be active in real estate investment in Florida and North Carolina. Now in their 49th year of marriage, he Judy have eight children and are approaching 20 grandchildren. 
Picture

Gilbert russell

Gilbert has a background in pharmacy management and works as a chaplain for various industries. He has a deep passion to help people with bleeding disorders and see people thrive. ​He is a kind and generous man who lives his life in faith. Gilbert possesses the courage of his convictions. He is devoted to his family. He and his exceptional wife Marie have been married for more than 35 years.

GET TO KNOW US

HOPE staff
​read our blog
​board of directors

CONNECT

contact us
request a speaker

RESOURCES

apply for assistance
request a speaker
financials
​FAQ

GET INVOLVED

volunteer
upcoming events 

Online Event Terms Of Engagement 

info@hope-charities.org
​​888.529.8023 office
​888.835.1449 fax
©  2022HOPE CHARITIES. ALL RIGHTS RESERVED.
what is hemophilia what is hemophilia a hemophilia treatment hemophilia symptoms hemophilia definition Haemophilia Genetic disorder anemia hemophilia causes is hemophilia dominant sickle cell anemia symptoms of hemophilia what causes hemophilia von willebrand disease treatment for hemophilia hemophilia meaning hemophilia a treatment hemophiliac hemophilia punnett square is hemophilia dominant or recessive porphyric hemophilia hemophilia of georgia difference between hemophilia a and b biomarin hemophilia can women have hemophilia von willebrand disease what is hemophilia a indiana hemophilia and thrombosis center hemophilia medications when was hemophilia discovered hemophilia treatment centers acquired hemophilia how is hemophilia diagnosed petechiae Intravenous therapy hereditary factor viii deficiency is hemophilia a dominant or recessive trait hemophilia a treatment Haemophilia Genetic disorder Haemophilia B Disorder Royal family hemophilia gene therapy why is my nose bleeding so much bleeding Breakthrough bleeding copay assistance programs Copayment premium assistance program Stop the Bleeding National Hemophilia Foundation Hemophilia Federation of America hemophilia genetics hemophilia treatment hemophilia meaning hemophilia symptoms types of hemophilia hemophilia b hemophilia diagnosis hemophilia wikipedia hemophilia financial assistance program hemophilia resources hemophilia help Factor VIII Factor IX Factor 8 Factor 9 Clotting Factor 
  • Home
  • About
    • What We Do >
      • Programs
      • Patient Stories
    • Meet Our Team >
      • Board of Directors
      • Advisory Council
      • Our Staff
      • James' Family Story
    • Resources
    • Products
    • Leader Resources
    • Sponsors
    • Financials
  • Events
    • ALL HOPE EVENTS
    • Prophy Conference 2023
    • Crawfish Boil
    • Family Education Weekend
    • Joint Health Conference
    • HOPE Conference
    • HOPE Night
    • Qualified Training
  • Contact
    • Request A Speaker
  • Applications
  • Blog
  • Donate
Live Chat Support ×

Connecting

You: ::content::
::agent_name:: ::content::
::content::
::content::