Patient Stories

Our Community, Our Stories

Every journey with a bleeding disorder is unique, but no one walks it alone. Our patient stories shine a light on the challenges, triumphs, and resilience of those living with hemophilia and other bleeding disorders. From the emotional journey to diagnosis to the daily realities of managing care, these stories educate, inspire, and empower.

Whether you’re seeking support, learning about a new diagnosis, or looking for hope in shared experiences, these firsthand accounts offer a glimpse into the strength of our community. Hear stories from individuals, parents, and caregivers who are navigating life with a bleeding disorder—because every story matters.

Alecia Gulledge

In her testimonial, Alecia shares her personal experiences—the struggles, the victories, and the lessons she’s learned along the way. Her story is one of resilience and strength, shedding light on the realities of living with a bleeding disorder and the importance of finding support and empowerment.

Amy Moon

Watch this powerful video as Amy shares her journey— from diagnosis to the challenges her family faces navigating life with a rare bleeding disorder. Her story is a reminder of why awareness and advocacy matter.

Valerie Jaime

The struggles faced by females in achieving a diagnosis and subsequent treatment represent a new horizon of challenges to be conquered by the bleeding disorders community. Valerie Jaime’s story highlights the issues faced by women, the implications of misdiagnosis, and the joy of finding success through advocacy and perseverance.

Chris Ramsey

Chris was born with Hemophilia when treatment was ineffective and lived through the years when treatment was severely affected by the tainted blood supply causing many people to suffer various comorbidities including HIV and Hepatitis. Chris' journey is one of great courage and triumph that he credits to the support from his family and community.