Hope for Hemophilia works hard to help families in crisis caused by hemophilia in numerous ways. Our two primary programs to meet the needs of the individuals and families facing a medical crisis caused by hemophilia are found in helping them access the resources that meet their specific needs quickly through our Resource Resource Program, and to fill in the gap with financial assistance when there is no other known solution through our Direct Financial Assistance Program.
Our team of patient coaches work tirelessly to help families in their most critical time of need while navigating the ups and downs of living with Hemophilia.
Our team of patient coaches work tirelessly to help families in their most critical time of need while navigating the ups and downs of living with Hemophilia.
➩ Patient Resource Program
One of the primary things that we do as an organization is “connect the dots”. We serve hemophilia families by educating and navigating resources that are specifically designed to helping hemophilia families. We educate them by coaching them through appropriate resources such as Helping Hands, PSI, Co-pay assistance and Compassion programs, Scholarship programs, and other assistance programs while maintaining a strict standard of patient confidentiality.
We also help patients discover and navigate assistance with national and local programs that are not hemophilia specific, but can help families in difficult seasons. We help patients filter through which programs they may qualify for and help them navigate the process with organizations such as United Way, Medicaid, Food Stamp Programs, Social Security Disability, Habitat for Humanity, local food banks, and other local community charities.
We also help patients discover and navigate assistance with national and local programs that are not hemophilia specific, but can help families in difficult seasons. We help patients filter through which programs they may qualify for and help them navigate the process with organizations such as United Way, Medicaid, Food Stamp Programs, Social Security Disability, Habitat for Humanity, local food banks, and other local community charities.
➩ Direct Financial Assistance Program
Our Direct Financial Assistance Program was designed to help individuals and families who are in crisis caused by hemophilia nationwide. Many of the families we help are either in the hospital, just getting out of the hospital, or have been through a prolonged season of bleeding causing them to face surgery. We define “crisis caused by hemophilia” as a crisis that is directly related to hemophilia. In other words, we ask ourselves the questions “Is this a crisis, or a personal need?” and “Was hemophilia the reason for this crisis?” We categorize needs in one of three tiers:
1.Crisis caused by hemophilia: Surgery due to bleeds, loss of hours at work due to excessive bleeding, injury requiring long recovery complicated by hemophilia.
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2.General Financial Crisis: Parent looses their job and income, and they have a child with hemophilia.
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3.Personal Need: laps in budget due to financial strain.
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Our Financial Assistance Program prioritizes patients in Tier 1 crisis and is available on a first come, first serve basis. We serve other families in Tier 2 & 3 only when funds are available. We can help with up to $1,000 of assistance per household. Our Financial Assistance Program has a 12 month waiting period for additional assistance, however, if declined they may re-apply in 30 days.
We value referrals and can provide training for any organization who may be interested in working closely with us to provide assistance to patients in crisis caused by hemophilia. If you would like more information on how to participate in a training event please contact us at info@hopeforhemophilia.com.