THIS YEAR WE ARE HOSTING A VIRTUAL FAMILY EDUCATION WEEKEND ON MAY 6-7, 2021! WE WILL HAVE RAFFLES, GIVEAWAYS AND SO MUCH MORE! WE CAN'T WAIT TO BE ABLE TO HOST YOU IN THIS WAY!
Join us live online on may 6-7th!
Featuring a World-Class Line up
Click on each speaker to see when their sessions are!
Claudio Sandoval, M.D.
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Graduated from New York Medical College and completed pediatric residency at Schneider Children’s Hospital and pediatric hematology-oncology fellowship at St. Jude Children’s Research Hospital. I was a pediatric hematologist- oncologist for 30 years, and now I am Director, Scientific & Medical Affairs- Hematology, Octapharma USA.
Dr. Sandoval's Session:
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Edgar Martinez
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Edgar is a family man, determined researcher, and committed educator. He was born with hemophilia A, but his condition was not diagnosed until age 10. Because he lived in the US Virgin Islands, where knowledge of hemophilia was extremely limited, and testing virtually unknown, it was not until his family moved to Florida that his diagnosis was made and his treatment began. The tipping point was a debilitating ankle bleed. The delay in his diagnosis underscored for Edgar both the impact of geography on disease management, and the importance of information. A very analytical guy, as an adult Edgar has continued to embrace research, education, and information sharing as key tools in disease management. He is also a firm believer in adherence, regular prophylaxis, and self-determination. These combine to ensure that he is healthy, happy, and fully able to enjoy life with his wife and two young children.
Edgar's Session:
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Melissa Farias
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Melissa has over twenty years in healthcare, sixteen of them as a Registered Nurse. She started her career in Bleeding Disorders in 2008 with Coram Infusion Services as an Infusion nurse. She worked on the Hemophilia team teaching and infusing patients with bleeding disorders. Her experience as a Registered Nurse began at Presbyterian Hospital in Albuquerque, NM in Pediatrics, the Emergency Room and in General Medicine. She felt that this best served her son’s needs as a severe Hemophilia A patient. His birth changed the course of Melissa’s career for the best. She enjoys her career and feels that she is right where she belongs educating anyone willing to learn about bleeding disorders.
Melissa's Session "Easing Infusion Frustrations with Children":
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Sara Caldwell
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Senior Clinical Specialist with Takeda for 4 years. Prior to this, she was
the Hemophilia Nurse Coordinator at Cook Children’s in Fort Worth, TX. She has 18+ years in Pediatric Oncology, Hematology, and Stem Cell Transplant. When not working she is taxing her three children around and shouting loudly for their various sports activities! Sara's Session "VWiD a patient presentation to learn about Vonvendi in the treatment of adult patients with VWD"
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Gretchen Hover
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Gretchen is a trusted speaker, trainer, author, and facilitator with over 25 years of experience working with patients, families, doctors, nurses, specialty pharmacists and more, for many rare diseases. She has been developing content and delivering cognitive and behavioral programs for nearly 10 years. Gretchen earned a master’s degree in Organization Development and Change from The Pennsylvania State University. She is an active member of the Massachusetts Biotechnology Council (MassBio).
Her previous work includes: • Master faculty and change agent for the United States National Security Agency (NSA) • Lecturer at Boston University and Bentley University in Massachusetts • Featured Speaker with Women in Technology International (WITI) Gretchen's Session "Think, Feel, Act"
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Dana Kuhn, PhD
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Person with Hemophilia A; Founder of Patient Services Inc (PSI) retired after 30 years; Creator of the health insurance premium and copayment assistance programs, Well-known community advocate for Blood Safety and Product Safety, Advocate for Ricky Ray Hemophilia Relief Fund Act, Advocate for Chronic Ill Communities; Created the model to address Medicare Part D out-of-pocket (“donut hole”), Consultant services for innovation in businesses.
Dana's Session "Simply Health Insurance"
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What is family education weekend?
Join us for our upcoming Family Education Weekend online! Get the kids, grab the fam and join us for some fun with games, food, and education! At this event we plan to have some amazing speakers, fun activities for the whole family such as cooking and art, and play some games with great prizes! We hope that you will make a plan to join us with your kids whether its for one session or all of them to make some great memories together on Zoom. Anyone can join whether you are someone living with, caring for, or supporting a person living with a bleeding disorder. Some of the sessions may require early registration in order to provide you with materials, but all sessions are free to attend.
Event Schedule
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Thursday, May 6th
9AM- Virtual Exhibit Hall
10:15AM- Youtube General Session 11:30AM- 1PM- "Simple Health Insurance" 2:15PM- 3:30PM- Virtual Exhibit Hall 5PM- "Easing Infusion Frustration with children" 6:15PM- 7:30PM- |
Friday, May 7th
9AM- Virtual Exhibit Hall
10:15AM- Youtube General Session 11:30AM-VWiD a patient presentation to learn about Vonvendi in the treatment of adult patients with VWD 1PM- 2:15PM- "Think, Feel, Act" 3:30PM- Virtual Exhibit Hall 5PM- 6:15PM- "The Balloon Show" 7:30PM- |
Event and booth sponsors
Click on our event sponsor virtual booths below. Please click on as many as you can to find some additional raffle opportunities to win some amazing prizes! Thank you to all of our sponsors for making Prophy Conference possible!
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Contact events@hope-charities.com for Sponsorship Opportunities!
