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Jonathan James

President/CEO

As a person who has suffered through the ups and downs of hemophilia, he understands the day-to-day struggles and the various types of crisis that patients face on a personal level. Jonathan has a background in helping individuals with their financial planning due to his experience as a financial advisor for over 10 years. He uses his background in both finance and his personal experience with hemophilia to help families in crisis with direct assistance and to coach them into a long-term sustainable path. Jonathan has substantial experience as a keynote and public speaker and continues to be a role model to many who are growing up with the challenges of hemophilia.

Porter Snow

Chief Financial Officer

Porter Snow has a background in education, project management, and financial management as a controller. He has a heart to help people in difficult seasons of life and after dedicating his time as a committed volunteer, he accepted a position to help manage the many complexities of overseeing our many programs, fundraising and development. Porter works hard to elevate others in everything he does. Porter has an incredible talent to work harder than most people would ever know and make it look easy because his heart for other people is always at the center of his concern. 

Brittnee Vasil

Volunteer Administrator 

Brittnee Vasil knows first hand the challenges of living through a crisis caused by hemophilia. Her son was born as a spontaneous mutation with severe hemophilia when they were stationed overseas. Since that time they were able to transition back to their home state of Florida and she has become an intrigal part of Hope for Hemophilia's desire to support military families affected by a bleeding disorder. 

Tanya Snoddy

Administrative Assistant

Tanya serves patients and their families by conducting patient interviews, collecting supporting documentation and compiling patient files for submission for our Review Committee. In addition, she manages volunteer responsibilities and communication. Tanya has the most gentle spirit and is willing to help anyone!​

Greg Webb

In-House Counsel

Gregory Webb has served as Hope for Hemophilia's legal counsel for over 10 years and now serves as our in-house counsel and HIPAA compliance officer. He has a huge heart for helping people going through a medical crisis and continues to serve people living with hemophilia by ensuring protections for the privacy of the patients we serve are met and are upheld with a standard of excellence. 

Suzi cannon

Patient Resources

Suzi Cannon is a mom of three boys and has owned her own business for more than 20 years. She has two sons affected by Hemophilia and understands first hand what it's like to experience a medical crisis caused by a chronic illness. She loves helping people through difficult seasons and is determined to help people find solutions in any circumstance. She works with patients to help them find support when they need it most. 

Carla James

Internal Relations

Carla has professional experience in human resources, business development, medical practice administration, international missions and teaching. She helped found HOPE as an organization in 2009 and ran it voluntarily for 4 years. As a mom of four kids, two with hemophilia, and a wife to a husband with hemophilia, she has first hand experience in advocating. Carla has volunteered as a hope group leader, volunteer coordinator, event manager, patient resource director, and many other positions within the organization. Beyond her professional and personal experience she is driven by her heart to love people. 

Brad Creel

Business Relations

Brad Creel has a background in operations, managing over 200 businesses in the restaurant space over the past 2 decades. He comes to us after volunteering for 8 years with HOPE, helping in any way he could be of service, from Gala production to the set-up and tear down of other HOPE events. Brad's background also includes music, theatre, and film acting. He genuinely loves people and is committed to making our world better one conversation at a time. 

Lori Beinvenu, LPC.

Patient Programs Administrator

Lori is a licensed professional counselor (LPC) with master's degrees in psychology and counselor education. She spent five years as the Executive Director of a nonprofit conducting suicide intervention training programs and writing grants. She also taught psychology for eleven years at a community college. She is married and has three sons, the oldest of which has hemophilia. Lori is passionate about helping people feel heard, known, and empowered. 

VOLUNTEER STAFF

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Hope for Hemophilia depends on the tireless labor of love from our volunteers. We have a few key volunteers that work almost as many hours as a full-time employee and although these people are not paid members of our team, they carry a significant amount of responsibility.

Joy has volunteered for many roles at HOPE, but her skills as an Event Designer are unmatched. Joy dreams up new ways on how to connect new people to the work we do at HOPE every single day. Her vision and leadership have become an integral part of our team and yet she gives her time willingly as a dedicated volunteer. 

Bobby Cannon has volunteered for HOPE events for many years and continues to be a vital part of our team. He loves to help people and is passionate about serving the hemophilia community. His devotion comes from raising his five sons, two with hemophilia. He is always excited for our next time to create an opportunity for people to gather and build community so that people know they are not alone.