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Jonathan James

President/CEO

As a person who has suffered through the ups and downs of hemophilia, he understands the day-to-day struggles and the various types of crisis that patients face on a personal level. Jonathan has a background in helping individuals with their financial planning due to his experience as a financial advisor for over 10 years. He uses his background in both finance and his personal experience with hemophilia to help families in crisis with direct assistance and to coach them into a long-term sustainable path. Jonathan has substantial experience as a keynote and public speaker and continues to be a role model to many who are growing up with the challenges of hemophilia.

Porter Snow

Chief Financial Officer

Porter Snow has a background in education, project management, and financial management as a controller. He has a heart to help people in difficult seasons of life and after dedicating his time as a committed volunteer, he accepted a position to help manage the many complexities of overseeing our many programs, fundraising and development. Porter works hard to elevate others in everything he does. Porter has an incredible talent to work harder than most people would ever know and make it look easy because his heart for other people is always at the center of his concern. 

Joseph Ferguson

Chief Operations Officer

Joe has a degree in Business Management and over 17 years of experience working as a public servant for the Federal Government on a number of local, Regional and National projects.  He has a background  in Benefit and Claims Management, Public Affairs, and Operations Management.  He is a gifted communicator and is skilled at assessing the needs of those in vulnerable situations and partnering them with local and governmental resources to provide relief.  Joe has a passion for people and a heart for service, and he finds joy in helping to meet the needs of others. 

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Suzi cannon

Community Outreach Coordinator

Suzi Cannon is a mom of three boys and has owned her own business for more than 20 years. She has two sons affected by Hemophilia and understands first hand what it's like to experience a medical crisis caused by a chronic illness. She loves helping people through difficult seasons and is determined to help people find solutions in any circumstance. 

Greg Webb

In-House Counsel

Gregory Webb has served as Hope for Hemophilia's legal counsel for over 10 years and now serves as our in-house counsel and HIPAA compliance officer. He has a huge heart for helping people going through a medical crisis and continues to serve people living with hemophilia by ensuring protections for the privacy of the patients we serve are met and are upheld with a standard of excellence. 

Lori Beinvenu, M.s., LPC

Grants Manager and Mental Health Advisor

Lori is a licensed professional counselor (LPC) with master's degrees in psychology and counselor education. She spent five years as the Executive Director of a nonprofit conducting suicide intervention training programs and writing grants. She also taught psychology for eleven years at a community college. She is married and has three sons, the oldest of which has hemophilia. Lori is passionate about helping people feel heard, known, and empowered. 

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Brittnee Vasil

Administrative / Event Assistant

Brittnee knows first hand the challenges of living through a crisis caused by hemophilia. Her first son was born with severe hemophilia, having no history of bleeding disorders in their family, while they were stationed overseas. She and her husband Rick started from scratch, learning all there was to know about bleeding disorders and how to overcome the litany of obstacles associated with that as a family.  Since that time, they have had a second son with severe hemophilia and have continued to  passionately and bravely serve the community, often being a voice of truth and wisdom to other families just starting out on this journey.  

Tesia nagorka

Project Manager

Tesia is a multi-tasking professional with attention to detail and over six years of experience organizing, supporting, and overseeing staff departments in project management. She is skilled in organization, leadership, communication, project management, and strategic planning. She has held leadership positions in project management for nonprofits and religious organizations, higher education, and marketing.  Tesia holds a bachelor’s degree in English and values communication as fundamental to the success of any team. She is highly relational in her approach to team building, and pours herself into everything she is handed. While she could make your head spin with spreadsheets, it's her love for people that really makes her shine.  Tesia has a passion to see others healed and whole and she has given most of her adult life to doing just that.

Sharon Meyers

Director of Fundraising

Sharon Meyers, Ed.D., CFRE, is a certified fundraising executive and former nonprofit CEO specializing in organizational change. She has a proven track record of successfully guiding nonprofit organizations through significant transitions and is highly regarded for her strategic thinking and innovation. She has held leadership positions in higher education, healthcare, K-12 education, religious organizations, and national patient advocacy organizations. Sharon is a true servant leader who is committed to helping people in need and advocating for patient rights, access to care, and drug safety. Sharon holds a Doctor of Education in Organizational Change and Leadership from the University of Southern California and an Executive Nonprofit Management certificate from Georgetown University. She is a Certified Fund Raising Executive (CFRE), certified in Mental Health First Aid, and holds a leadership coaching certificate from the Association for Talent Development. ​

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Carla James

Internal Development

Carla has professional experience in human resources, business development, medical practice administration, international missions and teaching. She helped found HOPE as an organization in 2009 and ran it voluntarily for 4 years. As a mom of four kids, two with hemophilia, and a wife to a husband with hemophilia, she has first hand experience in advocating. Carla has volunteered as a hope group leader, volunteer coordinator, event manager, patient resource director, and many other positions within the organization. Beyond her professional and personal experience she is driven by her heart to love people. 

Stephanie Lee

Patient Accounting Specialist

Stephanie has volunteered with Hope Charities for many years. When the opportunity to work full time for Hope Charities was presented, Stephanie did not hesitate to accept.
Her life achievement goal is to help others in whatever form that takes. She brings with her 28 years of experience interacting with people and helping them achieve their goals. Stephanie is fulfilling the role of Patient Accounting Specialist, where she ensures all funds for assistance are allocated with efficiency and excellence.

Joel Odor

Director of Patient Resources

Joel has a background in assisting people and helping others as they go through a time of crisis. He worked as a volunteer at a worldwide ministry for 13 years assisting others as they called in with a variety of needs. Little did he know that when the time came to switch paths, that what he did at the ministry would translate so effectively to what he is doing now in assisting the many patients that are coming to us for help. He has a heart for being there for others as they travel through the difficult paths that come into others’ lives and helping them through it.

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JOY HURST

Design Lead/Experience Manager

​Joy is a seasoned design lead and experience manager with a passion for creating captivating environments. With over a decade of expertise, Joy’s journey began as a dedicated volunteer for Hope, where she honed her skills for 8 years, mastering the art of decor, stage design, and marketing. Transitioning seamlessly into a professional role, she has since led numerous successful projects, infusing each with her unique blend of creativity and strategic vision. Joy has a strong commitment to excellence and innovation and she consistently delivers unforgettable experiences that leave a lasting impression.

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