Who is this meeting for?

This event is designed to help patients and caregivers to grow as leaders in their education, career, and commitment to their community. We focus our sessions on consistency in life, the importance of volunteerism, sustainable career choices, personal budgeting, and more. We also have special sessions for social workers, chapter leaders, and professionals to focus on understanding specific resources for people they support in the community. 

Register now

three-day online Only event

​Come for one session or all the sessions

Join us online via Zoom for some amazing sessions about how to have a successful family life while living with a bleeding disorder. You will have the opportunity to meet individuals and families from around the country who live with a bleeding disorder, win some amazing prizes, and learn from some incredible speakers. You must register to get all the information and updates on how to join each Zoom session. 

come hang out with us on computer, tablet, or mobile phone

Register Now

WE all can be leaders!

This event is designed to help patients and caregivers to use the lessons they've learned from living with a rare disease and apply them to their education, career, and commitment to their community. We focus our sessions on consistency in life, the importance of volunteerism, sustainable career choices, personal budgeting, and more. We also have special sessions for social workers, chapter leaders, and professionals to focus on understanding specific resources for people they support in the community. 

Where will this be held?

This event will be held via live stream on Zoom. You must register to get the invitations to Zoom breakout sessions and win prizes. Please check our website to register and for updates.

Event Schedule 

Join us for one session or all the sessions

 Thursday, July 14th
9:00 AM: WELCOME: Leadership Keynote Jonathan James
10:15 AM: Stay CALM: Learning to Recognize the Warning Signs of a Mental Health Crisis (Hosted by: Hope Charities)
11:30 AM: Exhibit Hall
1:00 PM: Pregnancy Planning, Cord Blood, and Genetics (Sponsored by: CVS Specialty)
2:15 PM: Cognitive Conversations: Think, Feel, Act (Sponsored by: Sanofi Genzyme)
3:30 PM: Exhibit Hall
5:00 PM: Put Yourself Out There (Sponsored by: Takeda)
6:15 PM: Day 1 ReCap and Closing Session

 Friday, July 15th
9:00 AM: Discussion Panel: Career Advancement 
10:15 AM: Health + Wellness + Smoothie Demo (Sponsored by: Paragon Healthcare)
11:30 AM: Exhibit Hall
1:00 PM: CDC Divison of Blood Disorders Programs (Hosted by: Hope Charities & CDC)
2:15 PM: Social Security Disability Programs (Hosted by: Hope Charities & SSD)
3:30 PM: Exhibit Hall
5:00 PM: Breakout Session: TBD
6:15 PM: Closing Session

 Saturday, July 16th
9:00 AM: Discussion Panel: Higher Education
10:15 AM: TBD (Sponsored by Ethical Factor)
11:30 AM: Weekend ReCap (Winners Announced)

Participate for a chance to win!

We love to have fun and give, give, give! During each session you will have a chance to win some amazing prizes! 

You could also win a $25, $5o, $100 or $200 gift card

See our full terms of engagement for a list of rules and qualifications

Terms Of Engagement

EVENT & BOOTH SPONSORS

Click on our event sponsor virtual booths below. Please click on as many as ​you can to find some additional raffle opportunities to win some amazing prizes! Thank you to all of our sponsors for making Prophy Conference possible! ​​