Two-day online Only event
Come for one session or all the sessions
Join us online via Zoom for some amazing sessions about how to have a successful family life while living with a bleeding disorder. You will have the opportunity to meet individuals and families from around the country who live with a bleeding disorder, win some amazing prizes, and learn from some incredible speakers. You must register to get all the information and updates on how to join each Zoom session.
We need family!
Family Awareness Meeting is a educational event designed to cultivate a conversation with the whole family; kids, parents, grandparents about living with bleeding disorders.
Where will this be held?
This event will be held via live stream on Zoom. You must register to get the invitations to Zoom breakout sessions and win prizes.
Event Schedule
Join us for one session or all the sessions
Thursday, April 27th
9:00 AM: General Session: "Community Is Family" - Jonathan James
10:15 AM: Exhibit Hall
11:30 AM: Breakout Session: "Health & Wellness – Intro to Stretching & Flexibility" - Kevin Harris
1:00 PM: Breakout Session: "Family Self-Care" - Lori Bienvenu
2:15 PM: Breakout Session: "Factor Up: Discover the Possibility of Higher Factor VIII Levels for Longer" - Vivek R Sharma, MD & Anna Moss
3:30 PM: Exhibit Hall
5:00 PM: Breakout Session: "Gene Therapy for Hemophilia" - Betsy Koval, RN BSN
6:15 PM: Day 1 Conclusion & Grand Prize
9:00 AM: General Session: "Community Is Family" - Jonathan James
10:15 AM: Exhibit Hall
11:30 AM: Breakout Session: "Health & Wellness – Intro to Stretching & Flexibility" - Kevin Harris
1:00 PM: Breakout Session: "Family Self-Care" - Lori Bienvenu
2:15 PM: Breakout Session: "Factor Up: Discover the Possibility of Higher Factor VIII Levels for Longer" - Vivek R Sharma, MD & Anna Moss
3:30 PM: Exhibit Hall
5:00 PM: Breakout Session: "Gene Therapy for Hemophilia" - Betsy Koval, RN BSN
6:15 PM: Day 1 Conclusion & Grand Prize
Friday, April 28th
9:00 AM: General Session: "The Whole Family: Everyone is Affected" - Jonathan James
10:15 AM: Exhibit Hall
11:30 AM: Breakout Session: "Carrier Barrier" - Victoria Tejeda-Martinez & Mary Jane "Missy" Frey
1:00 PM: Breakout Session: "Needle Phobia" - Lori Bienvenu
2:15 PM: Breakout Session: "Target Joints: How to Manage Target Joints and Preventing Target Joints" - Michael Zolotnitsky PT, DPT
3:30 PM: Breakout Session: "A Focus on Mental Well-Being" - Ajie Attawia
5:00 PM: Exhibit Hall
6:15 PM: Final Closing, Grand Prize, and Fortnight Game Night
7:30 PM: Family Fun Night: Game Night - Fortnite (must be logged into Closing Session to get the game code!)
9:00 AM: General Session: "The Whole Family: Everyone is Affected" - Jonathan James
10:15 AM: Exhibit Hall
11:30 AM: Breakout Session: "Carrier Barrier" - Victoria Tejeda-Martinez & Mary Jane "Missy" Frey
1:00 PM: Breakout Session: "Needle Phobia" - Lori Bienvenu
2:15 PM: Breakout Session: "Target Joints: How to Manage Target Joints and Preventing Target Joints" - Michael Zolotnitsky PT, DPT
3:30 PM: Breakout Session: "A Focus on Mental Well-Being" - Ajie Attawia
5:00 PM: Exhibit Hall
6:15 PM: Final Closing, Grand Prize, and Fortnight Game Night
7:30 PM: Family Fun Night: Game Night - Fortnite (must be logged into Closing Session to get the game code!)
come hang out with us on computer, tablet, or mobile phone
Participate for a chance to win!
We love to have fun and give, give, give! During each session you will have a chance to win some amazing prizes!
You could win a $25, $5o, $100 or $200 gift card
See our full terms of engagement for a list of rules and qualifications
A Special thank you to our sponsors:
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