 2025 Is Off to a Fast Start! It feels like we just welcomed the new year, and now we’re wrapping up the first quarter! Time flies when there’s so much happening at HOPE. We kicked off the year with our annual Staff Development Retreat,where we focused on strategy, team building, and planning for the year ahead. In February, we hosted our first live online patient education conference, Emerging Therapies—with 375 registrants averaging 114 attendees per breakout session! This event highlighted groundbreaking advancements in bleeding disorder treatments, and many of the sessions are now available on our YouTube channel. Be sure to subscribe and catch up on any you missed! Our monthly HOPE Sessions continue to grow, with participation up 20% from last year! These live webinars connect our community, provide key updates on treatment and support, and include fun giveaways. So far, we’ve hosted three sessions this year, averaging 60 attendees each. Check out our website for upcoming topics! Advocacy & Policy Updates In March, we met with 11 legislative offices in Washington, D.C. to advocate for policies supporting the bleeding disorders community. I also had the privilege of joining my local chapter, LHF, to meet with state legislators in support of the HELP CoPays Act. Additionally, I attended MASAC to stay informed on the latest policy and clinical guidance, and I was honored to speak at the Patient Assistance Program (PAP) conference in Philadelphia about the dangers of Alternative Funding Programs (AFPs), which are limiting patient access to medications. You can read more about our research on AFPs here. I also had the privilege of facilitating a panel discussion with leadership from the PAN Foundation and Help, Hope, Live on the impact of charitable donations for financial aid programs historically. Financial Assistance & Community Support Our Financial Assistance team has been working diligently, processing 344 patient assistance requests and distributing over $363,050 in financial aid to individuals facing hardship. The resilience of our community is inspiring, and we are committed to standing by those in need. One recent story truly hit home: In January, we assisted a man with Hemophilia A and inhibitors had been experiencing active bleeds. His HTC worked tirelessly to adjust his dosing, but the bleed left him unable to use his hand. On top of this, chronic arthritis from years of uncontrolled joint bleeds caused unbearable pain in his knees and ankles. Despite his struggles, he and his wife rely on their small business to make a living. But when he couldn’t work, it caused him to get behind on his bills. Hope was able to approve financial assistance for his rent for one month alleviating some of the financial strain. Overwhelmed with gratitude, he shared their heartfelt thanks with everyone who helped them through this difficult time. While we are making progress on serving the financial needs of our community, we still have more people in need than we have resources to meet the demand. This past quarter we were thankful to meet 58% of the need requested from our DPA program, but there many more people who need our help. To meet the growing need, we’re launching $25 for ‘25—a campaign encouraging supporters to give $25 per month to sustain our assistance programs. Every dollar donated by individuals goes 100% directly to patient aid. If you’re able to contribute, now is the time to make an impact. Learn More What’s Ahead There’s so much more to come! Mark your calendars:
Your $25 can help families in the bleeding disorders community meet basic needs during tough times. Watch this video to see how your support makes a difference.  Hope Sessions APRIL 23 1 PM CST HYMPAVZI: An innovative treatment approach for eligible patients with hemophilia A and B without inhibitors Learn about HYMPAVZI (marstacimab-hncq) and the patient experience, with Dr. Davide Matino, MD, MSc and Peter Fischer, HYMPAVZI clinical trial patient Speakers: Dr. Davide Matino, MD, MSc; Associate professor of medicine, McMaster University, MU Medical Center Hemophilia Clinic, and Thrombosis Clinic at the Juravinski Hospital and Peter Fischer, HYMPAVZI clinical trial patient This session is sponsored by Pfizer  Prophy Conference MAY 20-21 Join us online via Zoom for some amazing sessions and conversations about how to stay inspired to keep going with your preventative treatment regimen. You will have the opportunity to meet individuals and families from around the country who live with a bleeding disorder, win some amazing prizes, and learn from some incredible speakers. You must register to get all the information and updates on how to join each Zoom session. LEARN MORE  Hope Conference   Catch Up on Unmuted: Honest Conversations About Bleeding Disorders, Rare Diseases, and Chronic Illnesses Did you miss an episode of Unmuted this quarter? Now’s the perfect time to catch up! Our latest episodes dive into powerful stories, expert insights, and real conversations about life with bleeding disorders, rare diseases, and chronic illnesses. Don’t miss out—watch now and be part of the conversation:  Emerging Therapies Thank you everyone who attended our Emerging Therapies event! We appreciate your time and engagement as we explored the latest advancements in bleeding disorder treatment. Our goal was to provide you with the information needed to make the most informed decisions about your treatment options. Above, you’ll find data on attendance and key takeaways from the event. We’re grateful for your participation and look forward to continuing this important conversation with you! THANK YOU ETC 2025 SPONSORS! 
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