Hosted by 

Jonathan James

President/CEO of Hope-Charities

Jeffery Watkins

President of Blood Bond Bleeding Disorder Network

What is the Joint Health event?

Our Joint Health educational event is an opportunity for us to discuss the challenges of living with a bleeding disorder and the need to protect and maintain healthy joints. Joint disease is very common for people living with a bleeding disorder, unfortunately, the only way to truly prevent it is to do everything possible when your joints are still healthy to maintain that same level of health. 

During this event, we will explore all the aspects of how to prevent joint damage, how to keep cartilage strong and healthy, what to do when you have deterioration, how to manage pain, and so much more. We will hear from people who have lived with hemophilia and used healthy eating, physical fitness, and prophylaxis therapy to manage their joints. We will hear from professionals in the field of physical therapy, pain management, and nutrition. 

This event is also provided by the joint efforts of Hope Charities and the Blood Bond Bleeding Disorders Network in Chicago, IL. We believe that together we can do more than we can alone and this event is a great way to work together to provide the absolute best for our community. 

Join us for one session, or all of them! They will all be good. Please check back to this page regularly for updates to the agenda and times. 

Featuring a world-class lineup

Click on each speaker to see when their sessions are! ​

"Keeping your Joints Healthy in the time of COVID" - Julia Mason

Thursday September 16th at 1 pm CST (mark your calendar)

"Coping with Persistent Pain" - Joseph Schuch

Thursday September 16th at 5 pm CST (mark your calendar)

"Pursuing Health & Wellness while living with a bleeding disorder" - Kevin Harris

"Joint Health and the Importance of Movement" - Christopher Chan

"The Benefits of Joint Health Management" - Dr. Prasad Mathew

Event Schedule

Thursday, September 16th 

9:00 AM Joint Health Event Kick Off General Session

Welcome to the Joint Health event. In this session we will hear from Jeffery Watkins founder of BBBDN and Jonathan James of HOPE Charities about all the excited sessions and activities scheduled throughout the event. 

10:15 AM Scavenger Hunt Exhibit Hall 

Join us for our sponsor exhibit hall and play our scavenger hunt game to learn fun facts in small groups for a chance to win a $250 gift card! 

11:30 AM Impacto del factor 8 en la salud ósea - En Español

"Impacto del factor 8 en la salud ósea"
​- Dr Claudio Sandaval sponsored by Octapharma

12:00 PM - Break

Grab some coffee, take a walk, or get a bite to eat. ​

1:00 PM ​Keeping your Joints Healthy in the time of Covid

Join Mary Jane & Brenda Aldrich for this presentation on how to keep your joints healthy when living a more sedentary lifestyle. Sponsored by CVS Specialty. 

2:15 PM ​HEMLIBRA Ambassador Fireside Chat

Join Sonya Bross for this session sponsored by Genentech 

3:30 PM Scavenger Hunt Exhibit Hall

Join us for our sponsor exhibit hall and play our scavenger hunt game to learn fun facts in small groups for a chance to win a $250 gift card! ​

5:00 PM Coping With Persistent Pain: 

Considerations in Hemophilia - Join Joseph Schuch in this presentation on how to deal with persistent joint pain. Sponsored by Pfizer

6:15 PM Day 1 ReCap Closing Session with prize winners

Join us as we wrap up our 1st day of sessions to meet the winners of prizes throughout the day, hear from some of our amazing volunteers about how to get involved, and have one last opportunity of the day to win another $100 gift card. 

Friday, September 17th

9:00 AM "Alternative Therapy" Live Discussion Panel 

In this session we will discuss different approaches such as ultrasound guided injections, and chiropractic care for people living with bleeding disorders. 

10:15 AM Scavenger Hunt Exhibit Hall 

Join us for our sponsor exhibit hall and play our scavenger hunt game to learn fun facts in small groups for a chance to win a $250 gift card! 

11:30 AM ADYNOVATE HEMiD Patient Program

Join Sara Caldwell for this program sponsored by Takeda

12:00 PM - Break

Grab some coffee, take a walk, or get a bite to eat. 

1:00 PM ​Health & Wellness

Join certified health coach Kevin Harris on how to stay physically healthy while living with hemophilia. Sponsored by Paragon Specialty Pharmacy.

2:15 PM ​Joint Health and the Importance of Movement

Join Rick S. (Hemophilia Patient Advocate) and Christopher Chan (HTC Nurse Practitioner). Sponsored by CSL Behring

3:30 PM Scavenger Hunt Exhibit Hall

Join us for our sponsor exhibit hall and play our scavenger hunt game to learn fun facts in small groups for a chance to win a $250 gift card! ​

5:00 PM Managing the emotional affects of joint pain

Jonathan James, CEO and Lori Bienvenu, LPC will share some insights into how to navigate the emotional burden that pain brings from joint disease, arthritis, and internal bleeds. They will facilitate an open discussion with attendees during an extended Q&A. 

6:15 PM "Various types of surgery" Live Discussion Panel

In this session we will be joined by three panelists who have had various types of corrective joint surgery such as a double ankle joint synthetic replacements, joint transplant with bone graft, and stem cell injections. 

Event and Booth Sponsors

Click on our event sponsor virtual booths below. Please click on as many as ​you can to find some additional raffle opportunities to win some amazing prizes! Thank you to all of our sponsors for making Prophy Conference possible!