Join us from the comfort of your own home on November 5-7, 2020
for our Virtual Hope Conference!
for our Virtual Hope Conference!
Registration will be open soon!
learn, grow, inspire...The HOPE Conference is an annual event where people living with bleeding disorders come to learn, grow, and develop. This event is focused on education and will inspire attendees to be a better resource to their local communities through HOPE groups and community outreach. This meeting attracts approximately four hundred people from around the United States and includes leadership development for HOPE Group leaders, community volunteers, social workers, and patient advocates. This year we have added pre-conference training and certification for mental health outreach for approved attendees. We will have tracks for social workers, Hope group leaders, volunteers, kids (ages 5-12), and teens (ages 13-17). You don't want to miss this amazing event designed to inspire and cultivate hope for the future of our great community.
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2019 Annual Meeting Recap
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Past Speakers
These are just a few of the amazing speakers you will hear from this year both in our general sessions and breakout sessions
jonathan jamesJonathan is the founder and CEO of Hope for Hemophilia and was born with severe Hemophilia A. He has used his background in financial planning to help create financial assistance programs for people facing a crisis caused by hemophilia. Jonathan's passion is to inspire people with his story of finding internal strength through living with a rare disease.
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Debbie de la rivaDebbie is a licensed professional counselor and a certified Mental Health First Aid (MHFA) Instructor. MHFA is an educational program of the National Council for Behavioral Health which provides information on mental health conditions and teaches the skills necessary to have an open and effective conversation with people in psychological distress. She also has an adult son with hemophilia and has been an outspoken advocate for people living with bleeding disorders.
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Michele Louviere,LMFT, LLC
Michele has over 25 years of experience and extensive training in specialized evidence-based trauma recovery models for children, adolescents and adults. She works with couples to help heal their relational attachment wounds creating safe, intimate connections using Emotionally Focused Therapy. Michele is a Certified EFT Therapist and Supervisor. Michele has also provided training for multiple communities after traumatic events, such as New York, Israel, Las Vegas, California, Texas and North Carolina, and she serves on the American Association of Christian Counseling Board for Grief, Trauma and Disaster.
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Dr. Joanna DavisDr. Joanna Davis is the medical director at the University of Miami Hemophilia Treatment Center. More than 10 years ago, she established a hemophilia lecture series for community healthcare providers, which has reached over 2500 health care providers. Dr. Davis also created a series of bilingual“storybooks” for families living with bleeding disorders. These books have been distributed nationally and are a part of the NHF’s educational library.
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Dr Fernando
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Past Event Schedule
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THURSDAY NOV. 7TH
12 PM - PRE-CONFERENCE REGISTRATION FRIDAY NOV. 8TH
12 PM - CONFERENCE REGISTRATION 4 PM - OPENING SESSION 5 PM - EXHIBIT HALL 7 PM -GENERAL SESSION & DINNER PRESENATION 9 PM - FAMILY MOVIE NIGHT |
SATURDAY NOV. 9TH
7 AM - BREAKFAST & PANEL DISCUSSION 9 AM - EXHIBIT HALL 10 AM - BREAKOUT SESSIONS 11 AM - BREAKOUT SESSIONS 12 PM - LUNCH & PANEL DISCUSSION 1 PM - EXHIBIT HALL 2 PM - BREAKOUT SESSIONS 3 PM - BREAKOUT SESSIONS 4 PM - HOPE GROUP LEADER TRAINING 6 PM - EXHIBIT HALL 7 PM - GENERAL SESSION & DINNER PRESENATION SUNDAY NOV. 10TH
8 AM - CONTINENTAL BREAKFAST 10 AM - HOTEL CHECK OUT |
FAQ
Who do I contact if I have questions regarding registration?
Feel free to contact Michelle Danos - michelle@hope-charities.org / 225.361.8927 or email events@hopeforhemophilia.com
What does a Virtual Conference Mean?
Our General Sessions will take place on our Hope For Hemophilia Facebook page and the Breakout Sessions will take place on Zoom. The General Sessions are available to everyone but to receive the zoom link for the Breakout Sessions you MUST be registered.
Can I still win a giveaway in a Breakout Session if I don't register?
No, you shouldn't receive a Zoom link unless you are registered.
Past Sponsors
EVENT Sponsors
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Advocate Sponsors
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BOOTH SPONSORS
Aptevo Therapeutics
ARJ
BriovaRX
Cottrill's
Family Factor
Grifols
Rare Patient Voice
Sanofi Genzyme
Spark
Aptevo Therapeutics
ARJ
BriovaRX
Cottrill's
Family Factor
Grifols
Rare Patient Voice
Sanofi Genzyme
Spark
contact events@hopeforhemophilia.com for sponsorship opportunities