In-Person Schedule
November 5–7, 2026 • Orlando, Florida
Thursday, November 5
8:00–9:30 AM
General Session
Breakfast & Opening Session
Palm Ballroom
9:45–10:45 AM
Breakout Sessions
Choose one session.
Hope Charities
Navigating Insurance Issues
More information coming soon.
Kollet Kullianos
Azalea / Begonia
Hope Charities
Save One Life - International Support
More information coming soon.
Cindy Komar
Fuchsia / Gardenia
Hope Charities
Trials and Emerging Therapies
More information coming soon.
Dr. David Clark
Kahili / Lily
Hope Charities
HOPE Federal Advocacy
More information coming soon.
Jim Romano
Orange Blossom / Narcissus
Hope Charities
More Information Coming Soon
Additional session details will be announced soon.
Hibiscus / Iris
Hope Charities
More Information Coming Soon
Additional session details will be announced soon.
Camilla / Dogwood
11:00 AM–12:00 PM
Exhibit Hall
Exhibit Hall
Grand Ballroom
12:30–1:30 PM
General Session
Lunch & General Session — Novo Nordisk
Palm Ballroom
1:45–2:45 PM
Breakout Sessions
Choose one session.
Pfizer
More Information Coming Soon
Additional session details will be announced soon.
Azalea / Begonia
Octapharma
Staying Ahead of Bleeding: Understanding VWD Prophylaxis
Focus: VWD
Explore how VWF prophylaxis can help prevent bleeding, support vascular and endothelial health, and protect day-to-day wellbeing, including who may benefit and what to discuss with your care team.
Dr. Amber Federizo - Senior Medical Science Liaison, Nursing – Hematology, Octapharma USA
Fuchsia / Gardenia
Sanofi
Meet UP with ALTUVIIIO Peers
Focus: Hemophilia A, Patients, Caregivers
Looking to connect with others in the hemophilia A community? Join a program led by a Sanofi Community Relations and Education (CoRe) Manager to learn about ALTUVIIIO—a Factor VIII replacement therapy. Following the presentation, you will have the opportunity to participate in a conversation with ALTUVIIIO Peers who share experiences and stories similar to yours.
Sanofi Community Relations and Education (CoRe) Manager and Sanofi Peers
Kahili / Lily
CSL Behring
More Information Coming Soon
Additional session details will be announced soon.
Orange Blossom / Narcissus
Novo Nordisk
More Information Coming Soon
Additional session details will be announced soon.
Hibiscus / Iris
Genentech
Access in Action: Navigating Insurance Coverage in Hemophilia A and for HEMLIBRA (emicizumab-kxwh)
Focus: Access
Getting the hemophilia A treatment you need shouldn’t feel like a full-time job. Whether you’re choosing a new health plan, applying for copay assistance, or responding to a coverage denial, this session - featuring a hemophilia A caregiver and Genentech Account and Community Manager (ACM) offers practical guidance and peer-to-peer insights to help you navigate potential access challenges. You’ll walk away with actionable tips and resources for navigating access to hemophilia A treatment, and considerations for HEMLIBRA (emicizumab-kxwh).
Esmeralda Vázquez, OTD, OTR/L
Camilla / Dogwood
3:00–4:00 PM
Exhibit Hall
Exhibit Hall
Grand Ballroom
5:30–8:00 PM
General Session
Dinner & HOPE Night Awards Ceremony
Palm Ballroom
Friday, November 6
8:00–9:00 AM
General Session
Finding Your Orbit: Life with the First Subcutaneous Prophylaxis for People with Hemophilia A
Focus: Hemophilia A
3, 2, 1...prepare to blast off into an interactive space journey of what everyday life looks like with the first subcutaneous prophylaxis treatment for hemophilia A. Along the way, we will open flight logs to hear experiences from individuals living with hemophilia A to help guide your own journey. We’ll cover pre-launch checks on efficacy and safety data, then launch into joint health insights.
Derek Nelson, MBA, BSN
Palm Ballroom
9:00–9:30 AM
General Session
Short General Session — HOPE
Palm Ballroom
9:45–10:45 AM
Breakout Sessions
Choose one session.
Novo Nordisk
More Information Coming Soon
Additional session details will be announced soon.
Azalea / Begonia
Pfizer
More Information Coming Soon
Additional session details will be announced soon.
Fuchsia / Gardenia
Medexus
Llevamos La Valentía En La Sangre - Sé parte de una historia de héroes que protegen el futuro de las personas con hemofilia.
Focus: Spanish
Consiga una perspectiva única sobre un capítulo decisivo de la historia de la comunidad de la hemofilia durante los años 70 y 80 en este emocionante relato que se inspira en algunos de los guerreros más famosos de la historia: los espartanos. Con anécdotas cercanas y consejos del mundo real sobre cómo puede seguir adelante con la causa, esta es una historia que llega a todas las generaciones.
Felix Jacquez-Garcia
Kahili / Lily
TBD
More Information Coming Soon
Additional session details will be announced soon.
Orange Blossom / Narcissus
Octapharma
Mild Hemophilia A (Including Women) and Other Bleeding Disorders: Be Heard, Get the Care You Need
Focus: Hemophilia A
Learn practical strategies to recognize and document bleeding, communicate your history, ask the right questions, and advocate for appropriate evaluation and care when symptoms are overlooked.
Marjorie Hunt – Senior Medical Science Liaison – Hematology, Octapharma USA
Hibiscus / Iris
Sanofi
ALPROLIX Peer Meetup
Focus: Hemophilia B, Patients, Caregivers
Meet up with your Peers - Connect with other people in the hemophilia B community. A Sanofi Community Relations and Education (CoRe) Manager will talk about a Factor IX replacement therapy. Then, join Peers and hear about their experiences.
Sanofi Community Relations and Education (CoRe) Manager and Sanofi Peers
Camilla / Dogwood
11:00 AM–12:00 PM
Exhibit Hall
Exhibit Hall
Grand Ballroom
12:30–1:30 PM
General Session
Lunch & General Session — Pfizer
Palm Ballroom
1:45–2:45 PM
Breakout Sessions
Choose one session.
Octapharma
Factor Beyond Hemostasis: Exploring Its Broader Role in Health
Focus: VWD & Hemophilia A
Factor is best known for preventing and treating bleeding. Explore emerging evidence on its broader roles in the body, including interactions with cells, tissues, inflammation, and overall health—and what this may mean for people with bleeding disorders.
Claudio Sandoval – Senior Director, Scientific and Medical Affairs, Octapharma USA
Azalea / Begonia
Bayer
We are One
We Are One is a community-focused storytelling program that brings together individuals and families impacted by bleeding disorders to share experiences, build connections, and strengthen support through open and authentic dialogue. By creating space for personal stories and shared experiences, the program aims to foster awareness, encourage meaningful conversations, and celebrate the resilience and strength of the community.
Brandon Young
Fuchsia / Gardenia
CVS
More Information Coming Soon
Additional session details will be announced soon.
Kahili / Lily
CSL Behring
More Information Coming Soon
Additional session details will be announced soon.
Orange Blossom / Narcissus
HEMA Biologics
Prepared for the Unexpected: Managing Breakthrough Bleeds in Hemophilia with Inhibitors
Focus: Hemophilia A and Hemophilia B with Inhibitors
Dr. Quon will discuss breakthrough bleeds in people with hemophilia A or B with inhibitors, including what they are, why they can occur, and important considerations for managing them. This session will provide practical information to help patients and caregivers feel more informed and prepared when navigating breakthrough bleeds.
Doris Quon, MD, PhD
Hibiscus / Iris
Takeda
More Information Coming Soon
Additional session details will be announced soon.
Camilla / Dogwood
2:45–3:45 PM
Hope Circles
Choose the conversation that fits you best.
Hope Charities
More Information Coming Soon
Additional session details will be announced soon.
Azalea / Begonia
Hope Charities
More Information Coming Soon
Additional session details will be announced soon.
Fuchsia / Gardenia
Hope Charities
More Information Coming Soon
Additional session details will be announced soon.
Kahili / Lily
Hope Charities
More Information Coming Soon
Additional session details will be announced soon.
Orange Blossom / Narcissus
Hope Charities
More Information Coming Soon
Additional session details will be announced soon.
Hibiscus / Iris
Hope Charities
More Information Coming Soon
Additional session details will be announced soon.
Camilla / Dogwood
3:45–4:45 PM
Breakout Sessions
Choose one session.
Sanofi
Sharing the Community voice: Learn from a peer about their experience with a subcutaneous treatment for hemophilia A or B
Focus: Hemophilia A, Hemophilia B, Patients, Caregivers
Join us for an engaging session to hear directly from two peers in the hemophilia community who will share their experience with a subcutaneous prophylactic treatment for people with Hemophilia A or B with or without inhibitors. You will also learn how this treatment works, its benefits and safety, and how to get the right dose.
Sanofi Community Relations and Education (CoRe) Manager and Sanofi Peers
Azalea / Begonia
Novo Nordisk
More Information Coming Soon
Additional session details will be announced soon.
Fuchsia / Gardenia
Genentech
ES UN SENTIMIENTO. El Que Sabe, Sabe: “Charla junto a la chimenea” con un embajador de habla hispana de HEMLIBRA
Focus: Spanish
Durante este programa interactivo, usted aprenderá sobre HEMLIBRA y lo que lo hace único para tratar la hemofilia A. Escuche experiencias de la vida real de alguien que ha cambiado a HEMLIBRA y obtenga respuestas a sus preguntas. Durante este programa estilo “charla junto a la chimenea”, escuchará las experiencias de la vida real de una persona sin inhibidores del factor VIII que ha cambiado a HEMLIBRA. Obtenga respuestas a sus preguntas y conozca a su gerente comunitario y de cuentas (ACM) de Genentech local.
Lucila Ramirez Donaldson, MBA
Kahili / Lily
Medexus
Sister Chat: Some Unfiltered Truth
Focus: Women
Advancing treatment, self-advocacy, and support for women with bleeding disorders. Join Kirstin and Lori in a sister chat that draws upon their vast experience in our community. Learn more about the evolving care of women with bleeding disorders, advances in treatment, and the importance of self-advocacy. All genders are welcome - advancing care and advocacy for women affects all of us.
Kirstin Drye and Lori Long
Orange Blossom / Narcissus
Pfizer
More Information Coming Soon
Additional session details will be announced soon.
Hibiscus / Iris
CSL Behring
More Information Coming Soon
Additional session details will be announced soon.
Camilla / Dogwood
5:00–6:00 PM
Exhibit Hall
Exhibit Hall & Giveaways
Grand Ballroom
Saturday, November 7
8:00–9:00 AM
General Session
Conversations Across Every Stage of Care: An ALTUVIIIO Peer Conversation
Focus: Hemophilia A, Patients, Caregivers
Navigating a transition in your hemophilia A care—whether moving from pediatric to adult care, gaining more independence in young adulthood, or adapting your routine later in life? Join a program led by a Sanofi Community Relations and Education (CoRe) Manager to learn about ALTUVIIIO—a Factor VIII replacement therapy. Following the presentation, you'll have the opportunity to participate in a conversation with ALTUVIIIO Peers at different life stages who share experiences and stories similar to yours.
Sanofi Community Relations and Education (CoRe) Manager and Sanofi Peers
Palm Ballroom
9:00–9:30 AM
General Session
Short General Session — HOPE
Palm Ballroom
9:45–10:45 AM
Exhibit Hall
Exhibit Hall
Grand Ballroom
11:00 AM–12:00 PM
Breakout Sessions
Choose one session.
Genentech
More Information Coming Soon
Additional session details will be announced soon.
Azalea / Begonia
HEMA Biologics
Stronger Together: Conversations from the Inhibitor Community
Focus: Hemophilia A and Hemophilia B with Inhibitors
Hear firsthand stories from patients and caregivers living with inhibitors. This facilitated conversation offers an opportunity to ask questions, share experiences, and connect with others who understand the challenges and triumphs of the inhibitor journey.
Inhibitor Patient/Caregiver Panel
Fuchsia / Gardenia
Pfizer
More Information Coming Soon
Additional session details will be announced soon.
Kahili / Lily
Novo Nordisk
More Information Coming Soon
Additional session details will be announced soon.
Orange Blossom / Narcissus
Kedrion
Creciendo con Hemofilia: Pasos para la independencia en el cuidado de tu salud
Focus: Spanish
Pasar de la atención pediátrica a la medicina de adultos requiere preparación, confianza y nuevas habilidades. Esta sesión ofrece a jóvenes con hemofilia y sus familias orientación práctica para afrontar esta etapa con menos estrés y asumir progresivamente la responsabilidad de su cuidado médico.
Samuel Pabon Rivera, MD
Hibiscus / Iris
Sanofi
Real Talk Roundtable: Exclusive Conversations with Sanofi peers on living with and managing Hemophilia
Focus: Hemophilia A, Hemophilia B, Patients, Caregivers
Grab a seat and join the conversation. This unique experience hosted by Sanofi brings together Peer Ambassadors currently using a Sanofi hemophilia treatment for candid, small-group discussions with HOPE attendees. Discuss the topics that matter most to you, hear authentic experiences, and engage in meaningful dialogue in a welcoming, informal environment. Sanofi Community Relations and Education (CoRe) Managers will also be available to provide educational information, answer questions, and connect you with helpful resources. Come for the conversation. Leave with real-world insights and new connections.
Sanofi Community Relations and Education (CoRe) Managers and Sanofi Peers
Camilla / Dogwood
12:30–1:30 PM
General Session
Partnering for Better Lives: Octapharma’s Commitment to the Bleeding Disorders Community
Focus: Advocacy
This symposium explores Octapharma’s commitment to helping people in the bleeding disorders community feel seen, heard, and supported through education, research, resources, and engagement.
Azim Saifee; Paul Wilk; Marjorie Hunt; [TBD], Patient Educator
Palm Ballroom
1:45–2:45 PM
Breakout Sessions
Choose one session.
Hope Charities
504/IEP
More information coming soon.
Latasha Holt
Azalea / Begonia
Hope Charities
Aging
More information coming soon.
Martin Addie & Dana Kuhn
Fuchsia / Gardenia
Hope Charities
Hope on the Hill
More information coming soon.
Whitney Gallaway
Kahili / Lily
Hope Charities
More Information Coming Soon
Additional session details will be announced soon.
Orange Blossom / Narcissus
Hope Charities
Navigating Medicaid, Social Security Disability, and Medicare
More information coming soon.
Joe Ferguson
Hibiscus / Iris
Hope Charities
Raising Champions
More information coming soon.
Trey Hall
Camilla / Dogwood
3:00–4:00 PM
General Session
Pre-Closing General Session — CSL Behring
Palm Ballroom
4:00–5:00 PM
General Session
Closing General Session & Final Giveaways — HOPE
Palm Ballroom
IF YOU CANNOT MAKE IT IN PERSON, YOU CAN STILL JOIN US ON YOUR COMPUTER, TABLET, OR MOBILE PHONE
You will still have access to everything going on at HopeConference from the comfort of your own living room or office. You will join other individuals from around the country who live with a bleeding disorder, win some amazing prizes given away at every session, and learn from some incredible speakers. Remember, you must register to receive all the conference information and updates as well as the links to join each Zoom session. Session links will be emailed to all registered attendees.
Event & Booth Sponsors
Thank you to all of our sponsors for making HOPE Conference possible!
PREMIER SPONSOR
DIAMOND SPONSOR
PLATINUM SPONSORS
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GOLD SPONSORS
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BRONZE SPONSORS
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SCHOLARSHIP SPONSORS
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BOOTH SPONSORS
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ADVOCATE SPONSORS
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*Please be aware that Hope Charities has not authorized any outside vendors to book hotel or travel arrangements for our exhibitors or attendees. All of this is done internally. To ensure your reservation is secure and that you are a part of the room block, please use the official registration and hotel links we provided. If you are contacted by a third-party company claiming to represent Hope Conference, please contact us right away so we can investigate the matter
contact [email protected] for sponsorship opportunities
