As a person who has suffered through the ups and downs of hemophilia, he understands the day-to-day struggles and the various types of crisis that patients face on a personal level. Jonathan has a background in helping individuals with their financial planning due to his experience as a financial advisor for over 10 years. He uses his background in both finance and his personal experience with hemophilia to help families in crisis with direct assistance and to coach them into a long-term sustainable path. Jonathan has substantial experience as a keynote and public speaker and continues to be a role model to many who are growing up with the challenges of hemophilia.
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As is his stature, so is his heart. With a drive to see that nothing falls through the cracks, he is a strength to this organization, our partners, and those we serve. With a background in teaching, project management, creating business systems and managing financials, he brings a broad range of experience and stability to this organization.
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Lizzie has grown up with a brother who lived with hemophilia and has known the challenges as a sibling. Lizzie has worked as a nurse and also has a background as a program manager for a national non-profit. Her heart to help people living through the challenges of a chronic illness is driven by empathy developed from personal experience. She is passionate about advocating for others and is ready to help anyone who needs it.
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Heather is a recent graduate from LSU with a degree in Disaster Management and enjoys organizing chaos. She loves coordinating events and has worked to put on many fundraising events such as walks, 5k’s, and concerts throughout her college experience. Her passion to cultivate community through outreach is driven by her compassion for people. Heather calls herself a “professional volunteer” and we are so thankful to have her as a part of our team.
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Alberto has volunteered as a HOPE Group leader in Dallas, TX for years and is passionate about connecting people. He has helped individuals to remember the importance of relationship while living with hemophilia. He is an inspiration to many living with hemophilia, and has dedicated himself to helping inspire future leaders. In addition, we are excited to have Alberto as a part of our team for his passion and his leadership as well as his communication with the Spanish speaking community that we serve.
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Tanya serves patients and their families by conducting patient interviews, collecting supporting documentation and compiling patient files for submission for our Review Committee. In addition, she manages volunteer responsibilities and communication. Tanya has the most gentle spirit and is willing to help anyone!
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Diagnosed with hemophilia at the Charleston, SC, Naval Hospital, Warren began serving the Bleeding Disorders Community in 1992, becoming an active board member of Hemophilia of Georgia and the Committee of Ten Thousand. He loves mentoring and encouraging the younger generation, bringing hope and encouragement to those in this community. He is a great friend and an integral part of Hope for Hemophilia. If you know him you have been blessed by him and if you don’t know him, when you see him, get to know him!
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VOLUNTEER STAFF
Joy has volunteered for many roles at HOPE, but her skills as an Event Designer are unmatched. Joy dreams up new ways on how to connect new people to the work we do at HOPE every single day. Her vision and leadership have become an integral part of our team and yet she gives her time willingly as a dedicated volunteer.
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Carla has been a part of HOPE since the very beginning. She has worked in every department and has been a significant influence in the creation, evolution, and cultivation of each of our programs. While she has done everything from patient assistance to volunteer management, she is a constant voice in helping our staff by defining each person's role and navigate the difficult decisions. She is a champion at helping our team maintain the heart of our mission and vision for the future.
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Matt has a background in non-profit leadership and professionally in Veterinary Medicine. Matt’s heart is as big it gets and he loves to inspire people to live out of the passion of their own heart and discover who they really are. He has served in many capacities at HOPE but mostly helps with coaching HOPE Group leaders learn how to lead others and navigate the challenging emotions of daily living with a rare disorder.
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