As a person who has suffered through the ups and downs of hemophilia, he understands the day-to-day struggles and the various types of crisis that patients face on a personal level. Jonathan has a background in helping individuals with their financial planning due to his experience as a financial advisor for over 10 years. He uses his background in both finance and his personal experience with hemophilia to help families in crisis with direct assistance and to coach them into a long-term sustainable path. Jonathan has substantial experience as a keynote and public speaker and continues to be a role model to many who are growing up with the challenges of hemophilia.
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As is his stature, so is his heart. With a drive to see that nothing falls through the cracks, he is a strength to this organization, our partners, and those we serve. With a background in teaching, project management, creating business systems and managing financials, he brings a broad range of experience and stability to this organization.
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Lizzie has grown up with a brother who lived with hemophilia and has known the challenges as a sibling. Lizzie has worked as a nurse and also has a background as a program manager for a national non-profit. Her heart to help people living through the challenges of a chronic illness is driven by empathy developed from personal experience. She is passionate about advocating for others and is ready to help anyone who needs it.
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Heather is a recent graduate from LSU with a degree in Disaster Management and enjoys organizing chaos. She loves coordinating events and has worked to put on many fundraising events such as walks, 5k’s, and concerts throughout her college experience. Her passion to cultivate community through outreach is driven by her compassion for people. Heather calls herself a “professional volunteer” and we are so thankful to have her as a part of our team.
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VOLUNTEER STAFF
Hope for Hemophilia depends on the tireless labor of love from our volunteers. We have a few key volunteers that work almost as many hours as a full-time employee and although these people are not paid members of our team, they carry a significant amount of responsibility.
Joy has volunteered for many roles at HOPE, but her skills as an Event Designer are unmatched. Joy dreams up new ways on how to connect new people to the work we do at HOPE every single day. Her vision and leadership have become an integral part of our team and yet she gives her time willingly as a dedicated volunteer.
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Carla has been a part of HOPE since the very beginning. She has worked in every department and has been a significant influence in the creation, evolution, and cultivation of each of our programs. While she has done everything from patient assistance to volunteer management, she is a constant voice in helping our staff by defining each person's role and navigate the difficult decisions. She is a champion at helping our team maintain the heart of our mission and vision for the future.
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