REGistration IS LIVE!
November 7th - 10th, 2019
New Orleans, LA
learn, grow, inspire...
The HOPE Conference is an annual event where people living with bleeding disorders come to learn, grow, and develop. This event is focused on education and will inspire attendees to be a better resource to their local communities through HOPE groups and community outreach. This meeting attracts approximately four hundred people from around the United States and includes leadership development for HOPE Group leaders, community volunteers, social workers, and patient advocates. This year we have added pre-conference training and certification for mental health outreach for approved attendees. We will have tracks for social workers, Hope group leaders, volunteers, kids (ages 5-12), and teens (ages 13-17). You don't want to miss this amazing event designed to inspire and cultivate hope for the future of our great community.
2017 Annual Meeting Recap
2019 Keynote Speakers
These are just a few of the amazing speakers you will hear from this year both in our general sessions and breakout sessions
Jonathan is the founder and CEO of Hope for Hemophilia and was born with severe Hemophilia A. He has used his background in financial planning to help create financial assistance programs for people facing a crisis caused by hemophilia. Jonathan's passion is to inspire people with his story of finding internal strength through living with a rare disease.
As a mom of two boys with hemophilia Cazandra had to quickly learn how to advocate for them and herself. After her experience of raising her boys she left her carreer as a middle school band director to become a health advocate blogger, columnist and speaker. In 2015 Cazandra had the opportunity to give a TED Talk and since has had over 1,700 views on her presentation on Hemophilia and Hope. Today she is working on her graduate degree and speaks to people all across the country with words of hope and encouragement.
Debbie de la riva
Debbie is a licensed professional counselor and a certified Mental Health First Aid (MHFA) Instructor. MHFA is an educational program of the National Council for Behavioral Health which provides information on mental health conditions and teaches the skills necessary to have an open and effective conversation with people in psychological distress. She also has an adult son with hemophilia and has been an outspoken advocate for people living with bleeding disorders.
Michele Louviere,LMFT, LLC
Michele has over 25 years of experience and extensive training in specialized evidence-based trauma recovery models for children, adolescents and adults. She works with couples to help heal their relational attachment wounds creating safe, intimate connections using Emotionally Focused Therapy. Michele is a Certified EFT Therapist and Supervisor. Michele has also provided training for multiple communities after traumatic events, such as New York, Israel, Las Vegas, California, Texas and North Carolina, and she serves on the American Association of Christian Counseling Board for Grief, Trauma and Disaster.
Dr. Joanna Davis
Dr. Joanna Davis is the medical director at the University of Miami Hemophilia Treatment Center. More than 10 years ago, she established a hemophilia lecture series for community healthcare providers, which has reached over 2500 health care providers. Dr. Davis also created a series of bilingual“storybooks” for families living with bleeding disorders. These books have been distributed nationally and are a part of the NHF’s educational library.
2019's Event schedule
THURSDAY NOV. 7TH
12 PM - PRE-CONFERENCE REGISTRATION
FRIDAY NOV. 8TH
12 PM - CONFERENCE REGISTRATION
4 PM - OPENING SESSION
5 PM - EXHIBIT HALL
7 PM -GENERAL SESSION & DINNER PRESENATION
9 PM - FAMILY MOVIE NIGHT
SATURDAY NOV. 9TH
7 AM - BREAKFAST & PANEL DISCUSSION
9 AM - EXHIBIT HALL
10 AM - BREAKOUT SESSIONS
11 AM - BREAKOUT SESSIONS
12 PM - LUNCH & PANEL DISCUSSION
1 PM - EXHIBIT HALL
2 PM - BREAKOUT SESSIONS
3 PM - BREAKOUT SESSIONS
4 PM - HOPE GROUP LEADER TRAINING
6 PM - EXHIBIT HALL
7 PM - GENERAL SESSION & DINNER PRESENATION
SUNDAY NOV. 10TH
8 AM - CONTINENTAL BREAKFAST
10 AM - HOTEL CHECK OUT
ADDITIONAL HOTELS NEARBY WE RECOMMEND
RENTAL CAR VENDORS:
Hertz Car Rental | 504 468 3675
Avis Rent A Car | 504 464 9511
Enterprise Rent A Car | 504 468 3018
National Car Rental | 888 826 6890
PARKING at Hilton New Orleans Airport (Hosting Hotel)
Parking is $12/day - for 50% ($6/day) go to the front desk and mention you are part of the group
How do I coordinate the shuttle to/from the airport? / Is there a set schedule?
The shuttle runs 24/7 on demand. Please arrive in the lobby at least 1 hour or more (depending on where flying/security) prior to departure.
Where do I go to catch the shuttle at the airport to go to the hotel?
The Transportation Center - across the drop off lanes near baggage claim.
Who do I contact if I have questions regarding registration?
Feel free to contact Heather Sullivan - email@example.com / 225.361.8927 or email firstname.lastname@example.org